1 00:00:00,000 --> 00:00:00,800 2 00:00:00,800 --> 00:00:04,180 WENDY LU: I always say that I am a proud disabled woman. 3 00:00:04,180 --> 00:00:08,070 It's something that people don't hear often. 4 00:00:08,070 --> 00:00:13,260 It's a core part of who I am, it's core part of my identity. 5 00:00:13,260 --> 00:00:18,720 When I used to go to my doctor's office when I was younger, 6 00:00:18,720 --> 00:00:20,640 one of the first things he would always say 7 00:00:20,640 --> 00:00:24,260 is, all right, so we've got to figure out how to get you 8 00:00:24,260 --> 00:00:25,910 got something out of your neck. 9 00:00:25,910 --> 00:00:29,710 They assume the end goal for me is to get rid of it. 10 00:00:29,710 --> 00:00:32,350 They don't even ask me what I want. 11 00:00:32,350 --> 00:00:36,330 Society thinks that the end goal is for disabled people 12 00:00:36,330 --> 00:00:40,190 to quote, "get better," or to find a care for themselves. 13 00:00:40,190 --> 00:00:43,890 Like, that's like, their hope in life. 14 00:00:43,890 --> 00:00:48,060 I wish we could get to a point where the focus is on what 15 00:00:48,060 --> 00:00:51,470 the disabled person wants for themselves 16 00:00:51,470 --> 00:00:54,480 versus what society tells us they 17 00:00:54,480 --> 00:00:55,590 need to do with their lives. 18 00:00:55,590 --> 00:01:01,800 19 00:01:01,800 --> 00:01:03,830 So I wear a tracheotomy tube-- 20 00:01:03,830 --> 00:01:06,590 trach for short-- it helps me freak breathe. 21 00:01:06,590 --> 00:01:08,470 I was born with vocal cord paralysis, 22 00:01:08,470 --> 00:01:11,990 which basically means that part of my vocal parts 23 00:01:11,990 --> 00:01:14,030 are paralyzed. 24 00:01:14,030 --> 00:01:17,270 And so it affects my breathing. 25 00:01:17,270 --> 00:01:18,740 But not my speaking. 26 00:01:18,740 --> 00:01:23,750 I remember when I started middle school, my teacher asked me, 27 00:01:23,750 --> 00:01:26,630 how would you feel about going up in front of class, 28 00:01:26,630 --> 00:01:30,500 and introduce yourself, and talk about your disability, 29 00:01:30,500 --> 00:01:33,260 just so that they can get used to it, 30 00:01:33,260 --> 00:01:37,840 and you can answer any questions they might have? 31 00:01:37,840 --> 00:01:40,940 And I think it was probably the first time 32 00:01:40,940 --> 00:01:45,620 that I spoke about my disability in front of people. 33 00:01:45,620 --> 00:01:48,410 I think I was like, a little flattered, a little excited. 34 00:01:48,410 --> 00:01:52,150 On one hand, it's like, I am really glad that I got to do it 35 00:01:52,150 --> 00:01:56,120 because so often, kids with disabilities-- or just people 36 00:01:56,120 --> 00:01:57,680 with disabilities in general-- 37 00:01:57,680 --> 00:02:01,040 aren't asked to share their personal experiences. 38 00:02:01,040 --> 00:02:04,590 They aren't seen as experts of their own lives. 39 00:02:04,590 --> 00:02:07,840 At the same time, it shouldn't also be expected 40 00:02:07,840 --> 00:02:12,100 of us to explain our lives. 41 00:02:12,100 --> 00:02:15,810 We shouldn't always put in the emotional labor, 42 00:02:15,810 --> 00:02:20,150 the physical labor toward educating 43 00:02:20,150 --> 00:02:22,928 able people on our identities. 44 00:02:22,928 --> 00:02:26,280 45 00:02:26,280 --> 00:02:30,100 If you had a disability that was confenital 46 00:02:30,100 --> 00:02:33,710 or that you acquired early on in your life, 47 00:02:33,710 --> 00:02:36,200 ableism is something that follows 48 00:02:36,200 --> 00:02:41,540 us from childhood up until you know, you're in the workforce. 49 00:02:41,540 --> 00:02:44,700 I went to Columbia Journalism School for graduate school. 50 00:02:44,700 --> 00:02:48,800 We took a tour at a really big newsroom. 51 00:02:48,800 --> 00:02:50,570 I won't say which one. 52 00:02:50,570 --> 00:02:52,420 It was a major newsroom. 53 00:02:52,420 --> 00:02:58,760 And I remember we were standing near a senior reporter's desk. 54 00:02:58,760 --> 00:03:00,440 He was answering someone's question. 55 00:03:00,440 --> 00:03:02,710 He saw me, and did a double take. 56 00:03:02,710 --> 00:03:06,380 He was like, oh blah, blah, blah-- what happened to you? 57 00:03:06,380 --> 00:03:09,530 At that moment, everybody fell silent, and looked at me. 58 00:03:09,530 --> 00:03:11,210 Like, all my peers. 59 00:03:11,210 --> 00:03:13,150 Oh, it's a trach tube. 60 00:03:13,150 --> 00:03:14,600 It helps me breathe. 61 00:03:14,600 --> 00:03:17,910 And he was like, yeah, but why do you need that? 62 00:03:17,910 --> 00:03:18,710 What happened to you? 63 00:03:18,710 --> 00:03:20,890 I don't mind questions. 64 00:03:20,890 --> 00:03:24,440 In fact, I prefer them much more than like, 65 00:03:24,440 --> 00:03:26,160 staring at me on the subway. 66 00:03:26,160 --> 00:03:29,600 But it's like, you're a reporter, right? 67 00:03:29,600 --> 00:03:36,060 You should know how to ask questions in a thoughtful way. 68 00:03:36,060 --> 00:03:39,400 There's that idea that abled people are 69 00:03:39,400 --> 00:03:41,295 entitled to our life stories. 70 00:03:41,295 --> 00:03:43,820 And it's like, no, you're not. 71 00:03:43,820 --> 00:03:47,290 Like, stop making things awkward for yourselves and me. 72 00:03:47,290 --> 00:03:50,310 73 00:03:50,310 --> 00:03:53,590 I've been in job interviews where I will get asked, 74 00:03:53,590 --> 00:03:56,370 so does the weather affect you? 75 00:03:56,370 --> 00:03:58,485 And I'm like, what do you mean? 76 00:03:58,485 --> 00:04:01,770 And he was sort of implying like, 77 00:04:01,770 --> 00:04:04,110 are you able to do the job? 78 00:04:04,110 --> 00:04:06,690 Even though you're disabled, like, 79 00:04:06,690 --> 00:04:09,120 can you still be a reporter? 80 00:04:09,120 --> 00:04:14,510 I feel like society already requires us to prove so much. 81 00:04:14,510 --> 00:04:17,160 Either it's like, we have to prove ourselves 82 00:04:17,160 --> 00:04:20,990 to be disabled enough to get health insurance, 83 00:04:20,990 --> 00:04:22,340 to get accommodations. 84 00:04:22,340 --> 00:04:26,460 But then on the other hand, it's like if we speak up too much 85 00:04:26,460 --> 00:04:29,550 about our disability, does that mean that like, oh, 86 00:04:29,550 --> 00:04:31,835 they're not capable enough as an employee? 87 00:04:31,835 --> 00:04:35,650 88 00:04:35,650 --> 00:04:40,070 I want to see more people with disabilities in the workforce. 89 00:04:40,070 --> 00:04:43,760 So it's specifically in my industry in journalism, 90 00:04:43,760 --> 00:04:47,140 as a journalist, I'm thinking every story 91 00:04:47,140 --> 00:04:49,090 has a disability angle. 92 00:04:49,090 --> 00:04:51,670 We don't just belong in the lifestyle section. 93 00:04:51,670 --> 00:04:55,660 Or we shouldn't just be made into inspiration porn. 94 00:04:55,660 --> 00:04:58,270 We're talking about education, or health, 95 00:04:58,270 --> 00:05:01,570 or sports, police brutality-- 96 00:05:01,570 --> 00:05:04,990 these are all things that affect the disabled community. 97 00:05:04,990 --> 00:05:09,160 Ideally, it should be something that every reporter 98 00:05:09,160 --> 00:05:10,380 thinks about. 99 00:05:10,380 --> 00:05:13,870 It should be something that is on everybody's minds. 100 00:05:13,870 --> 00:05:16,250 It shouldn't be on just us. 101 00:05:16,250 --> 00:05:21,280 We have to go beyond just like, we have a disabled person here. 102 00:05:21,280 --> 00:05:23,790 That we're now fully woke. 103 00:05:23,790 --> 00:05:26,540 We're now more inclusive. 104 00:05:26,540 --> 00:05:29,500 It's not just that disabled people have to be at the table. 105 00:05:29,500 --> 00:05:34,780 It's that we also need to be in key positions of power 106 00:05:34,780 --> 00:05:38,090 to make decisions for ourselves. 107 00:05:38,090 --> 00:05:43,600 Our work as human beings should be based on how sick we are 108 00:05:43,600 --> 00:05:45,560 or how healthy we are. 109 00:05:45,560 --> 00:05:50,040 That should already be given. 110 00:05:50,040 --> 00:05:53,302